Sun May 26 09:24:27 SAST 2013
Sun May 26 09:24:27 SAST 2013

Alex youngster with rare skin disease gets eternal rest at last

May 23, 2012 | Lerato Moeketse | 25 comments

SADNESS surrounded the Ramothata family of Alexandra as they buried their son who died from a rare genetic disorder.

SAD END: Goodwill Ramothata who suffered from a rare genetic disorder was buried yesterday. PHOTO: MOHAU MOFOKENG

Goodwill Ramothata died last week after a life-long battle with xeroderma pigmentosum.

He was buried yesterday at the Waterval Cemetery in Midrand.

The disease compromised his body's ability to repair damage caused by ultraviolet light, which meant his skin was too sensitive to the sun and he was forced to stay indoors all the time.

Ramothata's mother could not contain her grief as her son's body was lowered into the ground.

Ramothata, 21, had been in and out of hospital his whole life. He began his treatment at the Masakhane clinic in Alexandra and was referred to Chris Hani Baragwanath Hospital.

He was then referred to Charlotte Maxeke Hospital in Johannesburg where he underwent more than 10 operations. He died on May 16 at the hospital.

Ramothata was born with the condition and wore a towel around his face and head to cover his wounds. The skin at the back of his head was so corroded it revealed his skull.

He wanted to be a music producer and was passionate about technology. He also wanted to create his own website on which he would sell his music and interact with fans.

Ramothata had an 11-track hip-hop and R&B demo, which he wrote and recorded himself.

In one of the tracks he sings, I know it's hard but you have to be brave, hold on to tomorrow, there will be no more sorrow.

In his music he sings mostly about his condition and how he was looking forward to living a healthy and normal life.

Comments

Sun May 26 09:24:27 SAST 2013 ::
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May 23, 2012

rasefatee

Ramothata, 21, had been in and out of hospital his whole life. He
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Suffered for 21 years very sad indeed RIP our brother eish painful

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May 23, 2012

Mokgalaka2

Rest in peace brother
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May 23, 2012

TheMrs01

Death is something that we experience daily but we dont get used to it,,, i feel sorry for his parents may his soul rest in peace he is in a very much better place...
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May 23, 2012

gossipgirl

shame man, RIP brother...
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May 23, 2012

SKIZOBANTWANA

May his family stay strong, at least he's no longer in pains.. RIP BOY
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May 23, 2012

KETLAHONYOBAWASWABA

May your soul rest in peace my brother atleat you are in the place where there's no pain le thlakalantswiki yamolefatsheng lakakwano..RIP
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May 23, 2012

TKay

Sad indeed
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May 23, 2012

BaleliM

Rest in peace young man. You suffered for too long.
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May 23, 2012

queenzo

ok
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May 23, 2012

Lehido

Just came back from a Colleague's memorial service and I read this, My heartache just got worse...

Hamba kahle comrade
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