Dealing with shame of Stoma
FOLLOWING an incident that nearly killed him, a Soweto man is eager to remove the shame that patients feel when they make use of colostomy bags.
Branny Mthelebofu, who studied for Bachelor of Science degree, has become an "expert" at using a colostomy bag, which is a surgical bag that is attached to a patient's abdomen and is used to collect faeces.
However, using it can be complicated as patients have to deal with the smell of the bag's contents and have to constantly keep the bag attached to their stomach.
In partnership with the Gauteng department of health in 2009, Mthelebofu researched stomas at public hospitals in Ekurhuleni, which revealed a high number of people who had stoma operations.
A stoma is a surgically created opening in the body. The research also showed that there was a need for nurses who specialised in treating people with stoma operations.
"This condition seems to be a taboo subject, and many people are walking about hiding their colostomy bags out of self-pity," says Mthelebofu.
Besides the research, he is currently canvassing to have a special course on stoma for nurses made available in South Africa. He has also shot a documentary about his own experiences as a person who has lived with a colostomy bag for six months.
Mthelebofu was shot in the abdomen in 2000 and was operated on to repair damage caused by the bullet.
"It was something new and very complicated. I couldn't study or be around people because of the smelly bag. I was stressed and I had no family support because they did not understand it either. I lost friends, too," he said.
Gauteng department of health's deputy director in the epidemiology and research unit, Dr Mupata Likibi, who was the co-investigator in the research, says the government is challenged in dealing with stoma patients.
"It's a public health issue and the nurses aren't trained to specialise in this field. The government also doesn't seem to consider such training. If the colostomy is not cared for properly and the patient is not informed, it can lead to depression and infections that can cause death," says Likibi. - sifilel@sowetan.co.za
CONFIDENT: Branny Mthelebofu, a researcher from Soweto, is striving to bring awareness about patients who use the colostomy bag. PHOTO: VELI NHLAPO
Comments
kudi
so is there any improvement that would be doneReport Abuse
Papgat
Yah! this is challenging. I think the research should look around on how to patch the interstine.Report Abuse
MommaC
I have a friend who had a stoma for 18 months. There wasn't any smell. Is it dependant on the person being correctly trained to deal with it or the type of bag they use?Report Abuse
Mamelodian
What is the average life span of people with this illness? I'd loose my will to live.Report Abuse
MommaC
MamelodianBeing shot isn't really an 'illness'
Report Abuse
Eraser
yhoo this is bad.Report Abuse
Lehido
cant they think of an improved solution?Report Abuse
JANEL
Every person who has a colostomy should visit a stoma nurse. Every stoma is unique and needs specific materials, bags, etc. If they bag is not air-tight it will smell. Best care I could get for my mother (74) was from Sister Jane Poole at Wits Donald Gordon in Parktown Tel 011 482 1309. It changed my mother's life and acceptance to her stoma bag. It's all realy simple if dealt with effectively and with kindness, compassion and care.Report Abuse
imd
I lost friends, too," he said.================
you beter off without them blv me
What is a stoma?? cant get it ....
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Mamelodian
MommaC who said it's only people that got shot who have Stoma?Report Abuse
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