Sat May 25 08:19:35 SAST 2013

Doctors baffled over patient's rare disease

May 4, 2012 | Lerato Moeketse | 18 comments

DOCTORS at Charlotte Maxeke Hospital in Johannesburg are battling to determine how best to treat an Alexandra man who suffers from a rare genetic skin disorder.

Comments

Sat May 25 08:19:35 SAST 2013 ::
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May 4, 2012

Shirmy

If they are baffled then they shouldn't be shy to outsource.
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May 4, 2012

MommaC

Misleading headline.
They know what the problem is, they just have no way to treat it. Maybe the doctors should be in contact with the other facilities around the world to see if they can get him into one of the trial studies.
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May 4, 2012

Ann

shame man, poor boy..
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May 4, 2012

JajazQueen

Not all disease can be cured.

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May 4, 2012

Socrates

And this is why some of us advocate Euthanasia
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May 4, 2012

Idohl

Never loose hope my man. God is good all the time. May the doctors have the wisdom to cure you! In the meantime just try to find happinesss and appreciate the little things in life. Lord have mercy.
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May 4, 2012

Magwabane

If he was to be reffered to specialists in the US they would at least offer him options, some may be dangerous but that will be his call to make.Yes it can not be cured however if he is not well or is weak he should be nursed yes he can't be cured but he should be treated and they should do all in their power to save his life.Act 108 (SA constitution) guarantees the right to life, thus the government should do everything in their power to ensure that right is witheld
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May 4, 2012

Tabza325is

@JajazQueen, Look up Dr Sebi, he sounds like a crazy man when explaining the human Biology, he believes healing should start from an Atomic level before reaching the cellular level which you can address on a chemical level, he claims to have cures for many human illness. I've watched most of his documentaries explaining how the human DNA because of being made of molecules which have electrons structure around them how cell regeneration can be promoted by replenishing the electronic structure of our DNA molecular structure, some of his crazy dialogs are how they is no trace of a substance or compound called melanin in our DNA structure and that because our DNA dictates who we are, the colour of your eyes, your skin tone and complexion, your gender etc... molecular DNA structure is what determines our skin colour based on the Carbon composition within this DNA structure, he states that because our cells are covered by the mucus membrane alkaline food is what promote and protects the cell mucus membrane thus promoting cell regeneration and that acidic food is what causes cell degeneration. Look Dr Sebi up he is a crazy old dude but makes fascinating argument on why western medicine has fail to cure many diseases.
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May 4, 2012

G-force

Is this not and or similar to Michael Jackson’s disease?
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May 4, 2012

WordofGod

@Idohl
Never loose hope my man. God is good all the time. May the doctors have the wisdom to cure you! In the meantime just try to find happinesss and appreciate the little things in life. Lord have mercy
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i agree
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May 4, 2012

HelpGiver

God can cure this disease, i have seen worse sicknesses
come to The Arena of Liberty
www.emmanuel.tv
www.itvn.co.za
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May 4, 2012

MommaC

HelpGiver

Good idea.
And if you can't cure him then you (and all the other god botherers) close up sh0p, stop your scams and GO AWAY
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May 4, 2012

Mafu'theNkukhu

May THE ALMIGHTY SAVE THIS BOY'S SICKNESS SO THAT HE CAN LIVE A NORMAL LIFE!
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May 4, 2012

Papage

Where are the miracle Pastors?
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May 4, 2012

NyaroC

God have mercy
show your essence to this young pretty boy who has lost his hope and self-estem. whateva desease it is smear it off. I plead you don't turn your back on us, This boy must be healed withoout drinking any kind of herb or medicine in your sons name, Jesus... I know you can do that as you did many years ago, your power is constant it doesn't fluctuate. I praise you to do a miracle....do it ... do it!!!!!!!!!!
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May 4, 2012

tpaz

Zuma should adopt this boy.
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May 4, 2012

manyobaa

This story is similar to those of a fifteen year old boy who was the first aids victim in 1969. Doctors had no clue as to what was wrong with him and now this!
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May 4, 2012

Bebesocs

Dear South African Doctors and Expects, the fact of the matter is that there is a diagnosis, it means there is a cure whether to dampen the symptoms or cure, you cannot tell the country that it is a rare condition, so where did you get the name of that condition? Have you asked for help from other countries? have you asked Germany and America? have you reported the situation or condition to WHO, please do not fool us, treat the symptoms make the patient better and if possible send him where there is help, DO NOT DRAG YOUR FEET, the department nationally can send that young man where there is help at least to use the tax-payers' money effectively.
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